The main treatment for hemophilia B is replacement therapy. Replacement therapy consists of injecting the low or missing clotting factors directly into the bloodstream. In the case of hemophilia B, the missing factor injected will be factor 9.
Replacement therapy can be used on a long-term basis to prevent bleeding. People with severe hemophilia are more likely to receive this type of preventive replacement therapy. This therapy can also be given as needed to stop bleeding when it occurs, which is more common in those with milder hemophilia B.
Early treatment for bleeding is important to prevent or limit damage to joints, muscles, or other parts of the body.
Replacement therapy is often done at home. Home treatment has many benefits. However, it is important to be trained to do home infusions properly and safely.
(Click Hemophilia Treatment to learn more.)
Exercise is important for children and adults living with hemophilia B. Talk with your doctor about the type of exercise that is best for you or for your child and what to do to prevent injuries.
If you or your child has hemophilia B, learn as much as you can about the disorder and, if possible, join a support group.
Hemophilia treatment centers (HTCs) are located in many areas of the United States. These centers can provide treatment, education, and support to patients, their families, and their healthcare providers.
(Click Living With Hemophilia for more information about coping with this condition.)