Living With Hemophilia

Living With Hemophilia in Childhood

Challenges will arise as your child grows and becomes more active. Your child will need:
 
  • Treatment and regular health and dental care, including immunizations
  • A safe environment at home, daycare, school, and at the babysitter's
  • A proper diet to help maintain a healthy weight for his or her size
  • Education about hemophilia provided in a way that your child can understand
  • Support in dealing with living with hemophilia
  • Reassurance that having hemophilia is not his or her fault.
 
Young children need protection from things in the home and elsewhere that could cause injuries and lead to bleeding. Tips for making your home safe include the following:
 
  • Protect your toddler with kneepads, elbow pads, and protective helmets. All children should wear safety helmets when riding tricycles or bicycles, and should use the proper car seats or seat belts.
 
  • Be sure to use the safety belts and straps in highchairs, car seats, and strollers to protect your child from falls.
 
  • Remove furniture with sharp corners or pad them while your child is a toddler.
 
  • Keep small and sharp objects out of reach or locked away.
 
  • Use cabinet locks to prevent your child from opening cabinets.
 
  • Use electrical outlet covers.
 
  • Use baby security gates to keep your child away from stairs and other areas where he or she could fall or be injured.
 
  • Check play equipment and outdoor play areas for possible hazards.
 
  • Keep a cold pack in the freezer ready to use as directed or to take along with you to treat bumps and bruises. Popsicles work fine when there is minor bleeding in the mouth.
 
  • Keep a bag ready to go with items you will need if you must take your child to the emergency room or elsewhere.
 
  • Be sure that anyone who is responsible for your child knows that your child has hemophilia. Talk with your child's babysitters, daycare providers, teachers, other school staff, and coaches or leaders of after-school activities about when to contact you or to call 911 for emergency care.
 
  • Consider having your child wear a medical ID bracelet or necklace. If your child is injured, the ID will alert anyone caring for your child about the disease.
 
  • Learn how to recognize and examine your child for signs of bleeding.
 

Hemophilia Disease

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