Living With Hemophilia

Living With Hemophilia in Adolescents

Adolescence can be a difficult time for both the teenager and the family. Having to cope with hemophilia can be an added stress. As children begin to take more responsibility for themselves and their treatment, they will need education, supervision, and support.
 
Teenagers can learn to:
 
  • Recognize signs of bleeding and take appropriate action
  • Keep a diary or record of treatment
  • Do home infusions for themselves (with supervision)
  • Exercise regularly and safely
  • Avoid taking unnecessary risks
  • Take care of teeth and gums
  • Eat a healthy diet.
 

Can People With Hemophilia Exercise?

Exercising regularly helps keep muscles flexible, strengthens joints, and helps in maintaining a healthy weight. Children and adults living with hemophilia should get regular exercise. However, they may have restrictions on what they can or cannot do.
 
People with mild hemophilia can participate in a variety of activities. Those with severe hemophilia should avoid contact sports and other activities that are likely to lead to injuries that could cause bleeding.
 
A physical therapist can develop an exercise program tailored to your needs and teach you how to exercise safely. Talk with your doctor or physical therapist about the recommended types of exercise and sports for people living with hemophilia.
 
You or your child may also be able to take clotting factors prior to exercise or a sporting event to prevent bleeding.
 
In general, safe exercises or activities include:
 
  • Swimming
  • Biking (while wearing a helmet)
  • Walking
  • Golf.
 
Activities that are not usually considered safe for those with hemophilia include most contact sports, such as:
 
  • Football
  • Hockey
  • Wrestling.
 

Hemophilia Disease

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