Living With Hemophilia (Cont.)

Living With Hemophilia: Traveling

When traveling:
 
  • Take adequate hemophilia treatment materials along. Make sure to take enough clotting factors for the length of the travel.
 
  • Get a letter from your doctor or your child's doctor describing your condition or your child's condition and treatment. Always carry the doctor's letter with you when traveling.
 
  • Find out in advance where to go for care when out of town.
 

Living With Hemophilia: Cost Issues

Clotting factors are very costly and many health insurance companies will only pay for clotting factors on a case-by-case basis. It is important to know:
 
  • What your insurance covers
  • If your insurance has a "cap" on the dollar amount that it will cover and what that amount is
  • If there are restrictions or waiting periods.
 
As children grow, it is important to learn about the different available options for insurance. Career counseling can help you or your child find a job and keep health insurance coverage.
 

Living With Hemophilia: Education and Job Training

If you have hemophilia, it is important that you complete your education. Getting a good education and advanced job training "opens the door" to the kinds of jobs that are ideal for those who cannot do hard physical work.
 

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Written by/reviewed by: Arthur Schoenstadt, MD
Last reviewed by: Arthur Schoenstadt, MD