Living With Hemophilia

Medication Precautions

People living with hemophilia should avoid medications such as:
 
  • Aspirin and other drugs that contain salicylates (never give children medicine that contains aspirin)
 
These medications "thin" your blood and increase the chance for bleeding.
 
A medicine that is effective in reducing pain is the COX-2 inhibitor celecoxib (Celebrex®).
 

Hemophilia Treatment at Home

Home treatment has many benefits. It allows:
 
  • Early treatment of bleeding
  • Fewer trips to the hospital
  • More independence
  • A sense of control over the disorder.
 
If you are treating yourself with infusions of clotting factors, or treating your child at home, there are some precautions you should take:
 
  • Follow recommendations for storage, preparation, and use of clotting factors and treatment materials
  • Keep a record of all medical treatment
  • Know the signs and symptoms of bleeding or infection and what to do
  • Have someone with you when you do your infusions
  • Know the signs and symptoms of an allergic reaction and what to do
  • Know when to call the doctor or 911.
 

Traveling With Hemophilia

When traveling:
 
  • Take adequate hemophilia treatment materials along. Make sure to take enough clotting factors for the length of the trip.
 
  • Get a letter from your doctor or your child's doctor describing your condition or your child's condition and treatment. Always carry the doctor's letter with you when traveling.
 
  • Find out in advance where to go for care when out of town.
 

Hemophilia Disease

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